Kannur : Unaware of his villagers’ Rs 18-crore vigil to fetch the exorbitantly priced oversees drug to heal his condition, 6-month-old Imran, bid goodbye to his loved ones and this world he barely lived to see. Yesterday late night, on the eve of Eid, little Imran Muhammad breathed his last at Kozhikode Medical College where he was being treated for a rare condition- Spinal Muscular Atrophy(SMA). Imran was third child of the couple Arif and Ramisa from Perunthalmanna and . was steadily losing his mobility owing to the disease.
A charity drive organised by leaders and families from the neighbourhood raised Rs 18 cr in cost toward the drug Zolgensma - the prescription gene therapy that’s known to treat the disorder. The drug is American make and comes with import tax of Rs 6 crore, which the state govt had urged the centre to waive earlier.